Timeline summary

*** Thanks for starting this! The timeline below is a bit dry, I just want to jot down the main events. Feel free to add. Of course I also want to post more about how Felix is doing!!! ***

Dec 9 : first "seizure". right leg and right arm. eyes looking to the left.

Dec10: consult with Dr. McDonalds

Dec 11: 30min EEG. Normal.

Dec 19: several new episodes. Going to ER. In hospital from Saturday to Monday (6th floor). MRI and 20 hr video EEG, all normal.

Dec 24: back in ER. Felix had numerous episodes since the previous night (~15). Episodes getting longer and more frequent.

Dec 24-27: PICU. 48 hr EEG. Nothing abnormal, except a few short times. Blood tests normal. lumbar puncture normal. ammonia nearly normal (a bit high, 54).

Dec 27: back on 6th floor. Drawing blood for testing for ~20 genes.
Doctors are puzzled. "your child is a mystery"